May 20, 2011 Update

I'm in 100% agreement with most of what you said and 120% with the rest, including my cooking skills. :)

Thanks for a great update.

...Jim

On May 20, 2011, at 12:57 PM, "John "  wrote:

Dad played tennis this morning. He seems relaxed. He played well. He went to Grant’s baseball game last night and enjoyed seeing Grant hit the game-winning run in the bottom of the last inning. 

We have cancelled Dad’s appt with Dr. Chang. He’s happy with his prostate function and for now sees no need to have the tests Dr. Chang wanted. 

This is a risky strategy and could come back to haunt us later, however I believe that this approach is best for Dad. Who knows how long his eyesight and/or kidneys will last? Since these don’t appear to be easily treatable conditions, I agree with the approach to let him have as much fun as he is able to right now. (I know that last sentence sounds ominous. It is not meant to be. I just want to acknowledge that we are aware of the risks involved in this decision.) For now he continues to appear stronger, healthier (probably from Jim’s cooking) and has resumed his activities and that is the most encouraging sign of all. 

John

May 18, 2011 Update

Went to Dad’s this am. The wound is closing fast. It looks good. We have cancelled all home health visits for the foreseeable future. He would have played tennis this am except for the ¼” of FREAKIN’ RAIN falling in Bakersfield in MAY!

John

May 17, 2011 Update

We saw Trevor the PA at Dr. Nichols office. He had some interesting insights on Dad’s health issues. After describing Dad’s health status before the biopsy and his status now, he did seem to agree that the information we could have determined from the tests was not worth the procedure. His feeling is that a bone marrow biopsy is needed and the two main diseases that could be determined from that are not treatable, so why bother.

Dad’s wound is healing nicely. The HH nurse yesterday had to use the wooden end of the Q-tip to get the wicking material in. Tonight we remove the wicking material for good and see what happens. The HH nurse is scheduled for tomorrow morning and I’ll be there to see if we might be able to discontinue that service. Dad is anxious to get back to tennis and with the nurse coming M-W-F that is difficult. The PA prescribed one more week on antibiotics as insurance against another abscess.

On the anemia front, while Dad’s numbers are low, they are not catastrophic. If they do get low enough for him to have a transfusion, then a nephrologist (kidney specialist) would prescribe epoitein(?), a hormone to stimulate the bone marrow to produce more red blood cells. The PA’s feeling was that the anemia is caused by Dad’s renal insufficiency. We will monitor Dad’s Red Blood Cells and kidney functions every three months. As for future doctor visits, he has one with Dr. Chang near the end of the month. No more with Dr. Nichols (unless the wound starts acting up again) for three months.

We got to spend some time in conversation while waiting for the doctor. Dad says he is eating well. He is feeling good and wants to get back to his routine. I think he is looking forward to living and not constantly going to the doctor. He is looking forward to the Boston trip in the fall. And, as a by-the-way, feels that Boston Rob did a great job on Survivor and deserved to win the million bucks.

Love,

John

May 16, 2011 Update

Dad’s home health nurse came by. It was a different person, Donna. The wound is closing up quickly now. She could barely get any wicking material in the incision. She also was able to forego the large pad bandage and just use the 4x4 gauze pads. Dad is talking about playing tennis soon. We see Dr. Nichol at 7:45 am tomorrow. Look for the next report then.

Love,

John

May 13, 2011 Update

Yep, I can make the Tuesday appt. I'll talk to Dad this weekend and see if
he wants to meet there or have me pick him up.

Thanks again, Jim for being around this week.

John

-----Original Message-----
From: Jim Harrer
Sent: Friday, May 13, 2011 2:04 PM
To: John Harrer; Tom Harrer; Bill;
Subject: Dad update...

Dad and I just finished another long walk. He's doing great. He
really wants to be in good condition for the Boston trip, so he's
motivated to stay on a program.

Dr. Nichols had an emergency with a patient today and couldn't see us.
I rescheduled for:

5-17-2011 @ 7:45am - assuming John could make that. I know it's
early, so if you would like another time their number is 323-8477.

The only question I really had for Dr. Nichols is how often he wants
the packing changed and how deep he wants it based on what the home
nurse is saying (ie. don't use so much and don't clean as deep with
the q-tip). The home nurse from Mercy used way more than I use, so I'm
not sure which procedure is correct. I see both points. We need to
find out what is best. One question I was going to ask is, if the
packing only needs to be re-packed once a day, then Dad could change
the outter dressing himself.

Central Methology called to remind us of an appointment on 5-17-2011 @
2:15pm. Dad doesn't know what this is for? Is this the kidney
follow-up that we want to cancel?

Dad is eating great, he's been eating three meals a day with me and
likes being on a schedule. I have been teaching him my old routine on
how to cook for one. He has been a good student and open to new
ideas. He has really been wonderful to be around ALL week. I just
have to be careful to not waite on him too much, he doesn't like it.

Let me know if I missed anything or if you have any questions.

Love,

...Jim

May 11, 2011 Update

Dad is going GREAT!

Medicare has agreed to pay for Optimum Health Care to come by Mon,
Wed, Fri at 8:30am to change his dressings and repack. The male nurse
who came by today said he will be the same person who comes by each
time. His name is Manuel. He left his cell # with Dad and told him
he could also call him 24x7 if he needed help. He seems to think he
won't need to come by for more than 2 weeks - but said Medicare will
pay for as long as Dad needs him. Optimum has John, Tom and my cell #
numbers as contacts.

Dad is eating great, and doing well. We went and had coffee with this
tennis buddies today at 9:30am and everyone was happy to see him.

The next follow-up appt is Friday with Dr. Nichols.

I honestly think Dad could easily get to a point where he changed his
dressing (not packing) once a day and you just change the packing
daily if you wanted to go to that schedule after I leave. That would
get you down to one visit a day if you wanted. Whatever Tom and the
doctors decide is fine by me, I'm just throwing that idea out there
since the nurse seem to think twice a day (at this point) may be a bit
overkill. I do think the top dressing should be changed more often
then he suggested however.

Hope this helps. Like I said, he is doing well. He also told me he
did go to the dentist recently, but couldn't tell me exactly when. He
changed dentist when the last one charged hum $1,000 for a deep
cleaning - that was 18 months ago. A call to his current dentist
might be in order just to check the facts. I'll try and dig more.

...Jim

May 9, 2011 Update

Hi Everyone,

Dad is home and is looking awesome. His energy level is improving
daily. He's glad to be home, however he's already bitching about
missing Mary's cooking.

Today's doctor appointment with Dr. Nichols went well. Dr. Nichols
gave dad a full exam and redressed his incision and re-packed the
wicking. He told Tom that he has done an amazing job being a male
nurse and if it wants to make $38/hour - he's welcome to join his
medical staff. Tom's retirement is looking solid!

All kidding aside, now that I have watched the clean-up procedures
twice, I have a better understanding of what is going on. Tom has
achieved rock star status in my book.

Dad's vitals were good, BP 126/74, temp 97.2. He's in good spirits,
not in a lot of pain, more discomfort than anything. The swelling is
doing better but still has a way to go. Dr. Nichols asked to see him
again Friday at 11:45am.

Dr. Nichols said he wasn't too concerned over Dad's kidneys. He said
he didn't feel his elevated levels were in the dialysis range. He
also was blunt about the suggestion we place him on a new diet. He
said it is common for people to want to listen to a nutritionist and
try to fix things. He said, at 87 let him enjoy what he enjoys. To
Tom's point however, living on cookies and cereal is simply not
healthy. I get it though, cooking for one, especially for guys, is
pretty boring. I did go shopping last night and restocked his
kitchen. I totally understand a lot of it may go to waste - but I just
couldn't stand to see no real food in the house. Tom/Mary have done a
great job of making us aware of this; I'm not sure what the solution
is. I'm fearful if we have food deliver, he'll simply not eat it and
it will stack up. It might be a good idea to go grocery shopping for
him every 2 weeks anyway and also throw the dated stuff out. If it's
here, he might make better choices.

He's glad to be home, he wants to go to Grant's last baseball game
tonight (which Tom has green lighted) so things are looking good. He
gets to taste some of my home cookin tonight, so the pressure is on me
to deliver. I better go, I have to go turn on the food channel.

Love,

...Jim